Your Care Connected (YCC) is an information sharing programme, hosted by Birmingham Cross City CCG on behalf of the other CCGs in the region. It uses the Medical Interoperability Gateway (MIG) to enable secondary care clinicians to view information recorded by the GP. In the next phase, the ambulance service and out of hours providers will gain access, and other organisations will follow.
YCC plays a role in the Birmingham Intelligent City programme, which aims to deploy a city-wide infrastructure to meet the evolving demands of its citizens and support new models of engagement.
“The Your Care Connected programme cannot be seen in isolation. It’s part of a much bigger initiative to influence the way in which our city functions, and how its people behave and connect with each other. It is very much linked to our Intelligent City programme, which aims to address the two main challenges we face: 1) our citizens have moved to a much more consumerist position and expect their healthcare where and when they need it, and 2) our population is increasingly diverse – socially, culturally, linguistically – so we need to come up with innovative ways of reaching out. We need to make it easier for people to take ownership of their health and care. Our infrastructure needs to support this. We are planning to deliver a city-wide wifi solution and a network of digital signs which can tailor their messaging to the onlooker (their likely needs and language), plus the current status of the local healthcare system (for example directing people to the best service based on availability). Even the weather can have an influence on messaging! For example alerts regarding the pollen count in hot weather or flu jabs in cold… In developing YCC, we are constantly looking ahead and thinking about how it needs to work in the context of all this. Designing a future-proof governance model has been important to us. We also want to use the new infrastructure to ensure YCC becomes embedded in everyday life, for clinicians and citizens alike.”
Ciaron Hoye, Head of Digital, Birmingham Cross City CCG
- Federated Registry Model YCC uses the Medical Interoperability Gateway (MIG) to provide a view of data from GP systems.
- Information is shared in real-time and all access is audited.
- Clinicians in “viewing” organisations can click through into YCC from their own clinical system, in patient context.
- Access to the shared record is read-only.
- In Phase 2, YCC will be extended to other CCGs and care settings. Analytics and research capabilities are in Phase 3.
- Hospital clinicians accessing YCC already view it as areal breakthrough in working cooperatively with GPs to improve patient care. Gone is the need to ring, email and fax around to obtain the most up to date information.
- The dataset currently made available from the GP record includes test results, diagnoses, treatments and medications.
- A significant piece of work has been carried out to define the data that will be made available to and from other care settings as YCC is expanded. A matrix has been drawn up, detailing the datasets for GP, hospital, mental health, social care, maternity, district nursing, and emergency care. These will be delivered in Phase 2 of the programme.
- As well as the sharing of data to support direct patient care, the YCC team is focused on the delivery of intelligence which will help clinicians chose the best pathways of care for their patients. This will not only improve the patient experience but also allow for more targeted interventions which in turn will have a positive knock-on effect on the wider health and care system, for example in avoiding unnecessary admissions.
- Move up a level, and measures are being built into the YCC programme to support city planning, whereby health and care data will be used to identify and redress weaknesses in the system or highlight opportunities to build on good practice. The consent model has been developed with this in mind from the start.
- Research has consistently been an aspiration for YCC and again the consent model is intended to cater for this, with patients having the ability to opt in for this purpose.
- Longer term ambitions relating to research will be delivered in Phase 3 of the programme, for example setting up an innovation and research hub.